Our Mission: To improve the health & quality of life for those with CDD

  • Home
  • For Families
    • Participate
    • FAQ
    • Publication Summaries
  • For Collaborators
  • About Us
    • Who We Are
    • Leadership
    • ICCRN Sites
    • Research & Publications
    • ICCRN Governance
  • Contact
  • More
    • Home
    • For Families
      • Participate
      • FAQ
      • Publication Summaries
    • For Collaborators
    • About Us
      • Who We Are
      • Leadership
      • ICCRN Sites
      • Research & Publications
      • ICCRN Governance
    • Contact
  • Home
  • For Families
    • Participate
    • FAQ
    • Publication Summaries
  • For Collaborators
  • About Us
    • Who We Are
    • Leadership
    • ICCRN Sites
    • Research & Publications
    • ICCRN Governance
  • Contact

Welcome to the ICCRN:

International cdkl5 clinical research network

International cdkl5 clinical research network International cdkl5 clinical research network International cdkl5 clinical research network

Our Mission

We seek to improve the health and quality of life for individuals and families living with CDKL5 Deficiency Disorder (CDD) through collaborative clinical research.

Who are we?

The International CDKL5 Disorder Database (ICDD) was established in 2012 by researchers at The Kids Research Institute Australia in Perth, Australia. In 2019, these Australia based researchers teamed up with United States CDKL5 Centers of Excellence. Together, we are facilitating CDKL5 Deficiency Disorder (CDD) clinical research endeavors across the globe and we call this partnership the International CDKL5 Clinical Research Network (ICCRN).

Our collaborative research network has been made possible by the generous support of the National Institute of Neurological Disorders and Stroke (NINDS) and the International Foundation for CDKL5 Research (IFCR).

Our Sites

Our Partners

ACCORDS

ICCRN: International CDKL5 Clinical Research Network

Questions about our research?

ICCRN@childrenscolorado.org

Contact Us
Top of Page

Copyright © 2025 International CDKL5 Clinical Research Network - All Rights Reserved.

Powered by

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept