Our Mission: To improve the health & quality of life for those with CDD
CDKL5 Centers of Excellence & ICCRN RESEARCH SITES
Children's Hospital Colorado Hospital - Aurora, CO
Children's Hospital of Philadelphia - Philadelphia, PA
Children's Hospital Colorado Hospital - Aurora, CO
Program Director/Principal Investigator: Dr. Tim Benke
ICCRN Director/ Principal Investigator: Dr. Scott Demarest
Project Manager: Gina VanderVeen
Research Coordinator: Flor Abila
Telethon Kids Institute - Perth, Australia
Children's Hospital of Philadelphia - Philadelphia, PA
Children's Hospital Colorado Hospital - Aurora, CO
Principal Investigators: Dr. Helen Leonard & Dr. Jenny Downs
Program Specialist: Jacinta Saldaris
Biostatistician: Peter Jacoby
Children's Hospital of Philadelphia - Philadelphia, PA
Children's Hospital of Philadelphia - Philadelphia, PA
Children's Hospital of Philadelphia - Philadelphia, PA
Principal Investigator: Dr. Eric Marsh
Genetic Counselor: Holly Dubbs
Research Coordinators: Rashmi Rasbud & Jennie Minnick
Biomarker Specialist: Joni Saby
Boston Children's Hospital - Boston, MA
St. Louis Children's Hospital - St. Louis, MO
Children's Hospital of Philadelphia - Philadelphia, PA
Lead Investigator: Dr. Heather Olson
Co-Investigator: Dr. WIlliam Hong
Research Fellow: Isabel Haviland
Genetic Counselor: Lindsay Swanson
Research Coordinator: Cari Daniels
St. Louis Children's Hospital - St. Louis, MO
St. Louis Children's Hospital - St. Louis, MO
St. Louis Children's Hospital - St. Louis, MO
Lead Investigator: Dr. Judy Weisenberg
Research Coordinator: Olga Novak
Cleveland Clinic - Cleveland, OH
St. Louis Children's Hospital - St. Louis, MO
St. Louis Children's Hospital - St. Louis, MO
Lead Investigator: Dr. Elia Pestana-Knight
Research Coordinator: Xiaoming Zang
UCLA Mattel Children's Hospital - Los Angeles, CA
UCLA Mattel Children's Hospital - Los Angeles, CA
UCLA Mattel Children's Hospital - Los Angeles, CA
Lead Investigator: Dr. Raj Rajaraman
Research Coordinator: Angela Martinez
Texas Children's Hospital - Houston, TX
UCLA Mattel Children's Hospital - Los Angeles, CA
UCLA Mattel Children's Hospital - Los Angeles, CA
Lead Investigator: Dr. Bernhard Suter
Research Nurse: Mohammed Sameeruddin
Research Coordinator: Elif Dundar
NYU Langone Health Center - New York, NY
UCLA Mattel Children's Hospital - Los Angeles, CA
NYU Langone Health Center - New York, NY
Lead Investigator: Dr. Dana Price
Research Coordinators: Emanuel Belen & Juliana Laze
Our Partners
